Welcome to the website of Neurofibromatosis New Zealand (NF NZ). NF NZ is devoted to raising awareness of neurofibromatosis and supporting families through the challenges of neurofibromatosis. This website contains information on neurofibromatosis and details on our planned activities.

Neurofibromatosis is a genetic disorder that causes tumours to grow on nerves, which can cause abnormalities in skin and bones. It affects about 1 in 3,000 people.

Our sponsors

We would like to say a BIG thank you to the NZORD team to make this website possible.  Parent to Parent logo.
Parent to Parent has given free training courses for parents. This has given many parents skills they utilise daily.
 Fathers' Support Group.
Father's Support Group (Auckland)
Many thanks for the kayak usage. These kayaks have been offered to our group for use by our families.  Childrens' Tumor Foundation logo.
Thanks CTF for permission to use their information.